Resumen

AFONSO, Tatiana et al. Parental Care for Children with Cerebral Palsy: a Systematic Literature Review. Rev. bras. educ. espec. [online]. 2016, vol.22, n.3, pp.455-470. ISSN 1980-5470.  https://doi.org/10.1590/S1413-65382216000300011.

The present systematic review aimed to reflect on empirical studies of parents' perceptions about the care directed to children with cerebral palsy. The electronic search was made on Psynet APA database and used an adapted protocol from Cochrane Collaboration guidelines. The initial sample consisted of 279 studies. Two relevance tests were conducted: test of relevance I - applied by one researcher on the abstracts, and test of relevance II- applied by two external judges that read the articles in full. Twenty-two articles were selected. The objectives of the selected articles underwent Nvivo 10 software for decoding cluster (attribute value) and applying content analysis. The analysis resulted in 5 major analytical categories: rehabilitation (portrayed issues such as family-centered service - FCS, perception of parents and quality of life of mothers during rehabilitation); experience in daily care (highlighting issues as difficulties of mothers of children with CP, parental experience, burden and care time); support (issues that described suffering of parents, spousal support, parental stress, parents' needs, perception of received support, child behavior problems and formal service care); parental satisfaction (FCS practices and the parental experience during surgical procedures experienced by children) and experiences with food. It is concluded that parents were dissatisfied with the provision of services in rehabilitation, and care practices underscored the emotional wear and tear which involved mainly mothers facing reported difficulties, which in most reports were without support and resources.

Palabras clave : Special Education; Cerebral Palsy; Child Care.

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