Resumen

SOUSA, Francisca Maria  y  SILVA, Maria Celeste Ramos. The right of education of children and youth with chronic diseases in Brazil: an analysis from the complex thoughts and critical theory. Educação. Santa Maria [online]. 2020, vol.45, e40327.  Epub 29-Ago-2023. ISSN 1984-6444.  https://doi.org/10.5902/1984644440327.

The purpose of this article is to emphasize the education process of children and youths with chronic diseases in Brazil. We realize that the impact of chronic disease and its damage on children and youths can harm their participation and leadership in schools and consequently in the society. Many studies about experiences of chronic illness on the socio-anthropological perspective in the last decades have intensified in Brazil by using the experience and point of view of the people in their narratives, in contrast to the biomedical conception. In this sense, for this project, we used the concepts of critical theory and complexity. In the same way that it points us to the need for a deeper understanding of the possibilities and challenges faced daily, but mainly and effectively about their rights and support for school life, just as it indicates a greater responsibility of the State for the expansion of policies public protection and social protection to this public.

Palabras clave : Infanto-juvenil; Schooling and hospitalization; Complexity; Right.

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