Abstract

SILVA, Emilly Carla Lima da et al. Support Needs of Families of Children and Adolescents with Disabilities at a Specialized Rehabilitation Center in Alagoas. Rev. Educ. Espec. [online]. 2023, vol.36, e66743.  Epub May 20, 2024. ISSN 1984-686X.  https://doi.org/10.5902/1984686x66743.

It becomes imperative for services that assist the family of people with disabilities to understand their family support needs. The objective of this work was to analyze the need of support directed to families of children and adolescents with disabilities in a specialized rehabilitation center in thest ate of Alagoas. This is a cross-sectional, descriptive and comparative study, with a quantitative approach. Forty user families were recruited, aged between 0 and 17 years, 11 months and 29 days. For data collection, the Family Needs Assessment Scale Protocol (ANF) was used. The data were tabulated in an electronic spreadsheet and analyzed statistically using Software R version 3.6.1. Among the participating family members, it was observed that the figure of the mother in care was recurrent, with 92.5% being primary caregivers. Most families needed intermediate support in the performance of basic tasks. Regarding the type of support that would be most useful for families, the results mentioned informational support as the one that would best meet the family's needs. Regarding the classification by factor of the ANF, it was found that the largest number of items indicating high need is found among the variables family life, free time and acquisition and management of products and services, as well as very high need in the area of ​​education . The data demonstrate the need to propose strategies aimed at developing support networks to support the families of children and adolescents with disabilities, in solving their needs.

Keywords : Family; Need support; Deficiency; Child and teenager.

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