Resumo

CUSTODIO, Lívia; GOMES, Ilvana  e  LEITAO, Ilse. Limitations imposed on schooling of children and adolescents with falciform disease. Sér.-Estud. [online]. 2018, vol.23, n.49, pp.249-266. ISSN 2318-1982.  https://doi.org/10.20435/serie-estudos.v23i49.1128.

Sickle cell disease (DF) is part of the hemolytic, chronic and hereditary group, evaluated as one of the main and most frequent pathologies of significant morbidity and mortality that affects the population, has a great diversity of clinical manifestations, present themselves through a series of complications and symptomatology which directly impact the quality of life of the patient. The objective of this study was to know the experiences and limitations of children and adolescents imposed by sickle cell disease on schooling. A qualitative approach was carried out in a public hospital in Fortaleza, Brazil, with 16 children and adolescents diagnosed with sickle cell disease through a semistructured interview and the construction of the story-drawing from May to July 2016. Among the findings, it was found that, during the period in which data collection was being performed, all participants were enrolled in a school. But in presenting the way they cope with the disease, some of the participants were told about their need to be absent from the classroom and school or from pain, from occlusive vaso-occlusive crises, or from treatment for health. It is concluded that the presence of painful symptoms associated with sickle cell disease and constant treatments can lead to some implications in the lives of people suffering from sickness, especially in the school context.

Palavras-chave : adolescent; child; school health.

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