<?xml version="1.0" encoding="ISO-8859-1"?><article xmlns:mml="http://www.w3.org/1998/Math/MathML" xmlns:xlink="http://www.w3.org/1999/xlink" xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance">
<front>
<journal-meta>
<journal-id>1413-6538</journal-id>
<journal-title><![CDATA[Revista Brasileira de Educação Especial]]></journal-title>
<abbrev-journal-title><![CDATA[Rev. bras. educ. espec.]]></abbrev-journal-title>
<issn>1413-6538</issn>
<publisher>
<publisher-name><![CDATA[Associação Brasileira de Pesquisadores em Educação Especial - ABPEE]]></publisher-name>
</publisher>
</journal-meta>
<article-meta>
<article-id>S1413-65382016000300455</article-id>
<article-id pub-id-type="doi">10.1590/S1413-65382216000300011</article-id>
<title-group>
<article-title xml:lang="pt"><![CDATA[Cuidado Parental à Criança com Paralisia Cerebral: uma Revisão Sistemática da Literatura]]></article-title>
<article-title xml:lang="en"><![CDATA[Parental Care for Children with Cerebral Palsy: a Systematic Literature Review]]></article-title>
</title-group>
<contrib-group>
<contrib contrib-type="author">
<name>
<surname><![CDATA[AFONSO]]></surname>
<given-names><![CDATA[Tatiana]]></given-names>
</name>
<xref ref-type="aff" rid="Aff"/>
</contrib>
<contrib contrib-type="author">
<name>
<surname><![CDATA[RAMOS]]></surname>
<given-names><![CDATA[Maely Ferreira Holanda]]></given-names>
</name>
<xref ref-type="aff" rid="Aff"/>
</contrib>
<contrib contrib-type="author">
<name>
<surname><![CDATA[FRANÇA]]></surname>
<given-names><![CDATA[Irlana Lessa]]></given-names>
</name>
<xref ref-type="aff" rid="Aff"/>
</contrib>
<contrib contrib-type="author">
<name>
<surname><![CDATA[PONTES]]></surname>
<given-names><![CDATA[Fernando Augusto Ramos]]></given-names>
</name>
<xref ref-type="aff" rid="Aff"/>
</contrib>
<contrib contrib-type="author">
<name>
<surname><![CDATA[SILVA]]></surname>
<given-names><![CDATA[Simone Souza da Costa e]]></given-names>
</name>
<xref ref-type="aff" rid="Aff"/>
</contrib>
</contrib-group>
<aff id="Af2">
<institution><![CDATA[,Universidade Federal do Pará Programa de Pós-Graduação Teoria e Pesquisa do Comportamento ]]></institution>
<addr-line><![CDATA[Belém PA]]></addr-line>
<country>Brazil</country>
</aff>
<aff id="Af3">
<institution><![CDATA[,Universidade Federal do Pará Programa de Pós-Graduação Teoria e Pesquisa do Comportamento ]]></institution>
<addr-line><![CDATA[Belém PA]]></addr-line>
<country>Brazil</country>
</aff>
<aff id="Af4">
<institution><![CDATA[,Universidade Federal do Pará Programa de Pós-Graduação Teoria e Pesquisa do Comportamento ]]></institution>
<addr-line><![CDATA[Belém PA]]></addr-line>
<country>Brazil</country>
</aff>
<aff id="Af5">
<institution><![CDATA[,Universidade Federal do Pará Programa de Pós-Graduação Teoria e Pesquisa do Comportamento ]]></institution>
<addr-line><![CDATA[Belém PA]]></addr-line>
<country>Brazil</country>
</aff>
<aff id="Af6">
<institution><![CDATA[,Universidade Federal do Pará Programa de Pós-Graduação Teoria e Pesquisa do Comportamento ]]></institution>
<addr-line><![CDATA[Belém PA]]></addr-line>
<country>Brazil</country>
</aff>
<pub-date pub-type="pub">
<day>00</day>
<month>07</month>
<year>2016</year>
</pub-date>
<pub-date pub-type="epub">
<day>00</day>
<month>07</month>
<year>2016</year>
</pub-date>
<volume>22</volume>
<numero>3</numero>
<fpage>455</fpage>
<lpage>470</lpage>
<copyright-statement/>
<copyright-year/>
<self-uri xlink:href="http://educa.fcc.org.br/scielo.php?script=sci_arttext&amp;pid=S1413-65382016000300455&amp;lng=en&amp;nrm=iso"></self-uri><self-uri xlink:href="http://educa.fcc.org.br/scielo.php?script=sci_abstract&amp;pid=S1413-65382016000300455&amp;lng=en&amp;nrm=iso"></self-uri><self-uri xlink:href="http://educa.fcc.org.br/scielo.php?script=sci_pdf&amp;pid=S1413-65382016000300455&amp;lng=en&amp;nrm=iso"></self-uri><abstract abstract-type="short" xml:lang="pt"><p><![CDATA[RESUMO: o objetivo da presente revis&#227;o foi refletir sobre estudos emp&#237;ricos acerca da percep&#231;&#227;o dos pais sobre os cuidados dirigidos ao filho com paralisia cerebral. A busca eletr&#244;nica se deu nas bases de dados Psynet APA e utilizou protocolo adaptado a partir das diretrizes da Cochrane Collaboration. A amostra inicial foi composta por 279 estudos, a partir da qual foram realizados dois testes de relev&#226;ncia: o teste de relev&#226;ncia I - aplicado aos resumos dos artigos por um pesquisador e o teste de relev&#226;ncia II- aplicado por dois ju&#237;zes externos que realizaram a leitura dos artigos na &#237;ntegra. Vinte e dois artigos foram selecionados. Os objetivos relatados foram submetidos ao Nvivo 10 software para an&#225;lise de cluster por decodifica&#231;&#227;o e aplica&#231;&#227;o de an&#225;lise de conte&#250;do. Tais an&#225;lises revelaram cinco grandes categorias anal&#237;ticas: reabilita&#231;&#227;o (servi&#231;os centrados na fam&#237;lia, percep&#231;&#227;o dos pais e qualidade de vida das m&#227;es durante a reabilita&#231;&#227;o); experi&#234;ncia nos cuidados di&#225;rios (dificuldades das m&#227;es, a experi&#234;ncia dos pais, sobrecarga e tempo de cuidado); apoio (sofrimento dos pais, apoio do parceiro, estresse, necessidades dos pais, percep&#231;&#227;o do suporte recebido, problemas comportamentais da crian&#231;a e servi&#231;o de cuidado formal); satisfa&#231;&#227;o dos pais (pr&#225;ticas de servi&#231;os centrados na fam&#237;lia e a experi&#234;ncia dos pais durante os procedimentos cir&#250;rgicos experimentados pelas crian&#231;as) e experi&#234;ncia na alimenta&#231;&#227;o. Concluiu-se que a satisfa&#231;&#227;o dos pais em rela&#231;&#227;o ao apoio recebido e aos servi&#231;os especializados se mostrou baixa.]]></p></abstract>
<abstract abstract-type="short" xml:lang="en"><p><![CDATA[ABSTRACT: The present systematic review aimed to reflect on empirical studies of parents' perceptions about the care directed to children with cerebral palsy. The electronic search was made on Psynet APA database and used an adapted protocol from Cochrane Collaboration guidelines. The initial sample consisted of 279 studies. Two relevance tests were conducted: test of relevance I - applied by one researcher on the abstracts, and test of relevance II- applied by two external judges that read the articles in full. Twenty-two articles were selected. The objectives of the selected articles underwent Nvivo 10 software for decoding cluster (attribute value) and applying content analysis. The analysis resulted in 5 major analytical categories: rehabilitation (portrayed issues such as family-centered service - FCS, perception of parents and quality of life of mothers during rehabilitation); experience in daily care (highlighting issues as difficulties of mothers of children with CP, parental experience, burden and care time); support (issues that described suffering of parents, spousal support, parental stress, parents' needs, perception of received support, child behavior problems and formal service care); parental satisfaction (FCS practices and the parental experience during surgical procedures experienced by children) and experiences with food. It is concluded that parents were dissatisfied with the provision of services in rehabilitation, and care practices underscored the emotional wear and tear which involved mainly mothers facing reported difficulties, which in most reports were without support and resources.]]></p></abstract>
<kwd-group>
<kwd lng="pt"><![CDATA[Educação Especial]]></kwd>
<kwd lng="pt"><![CDATA[Paralisia Cerebral]]></kwd>
<kwd lng="pt"><![CDATA[Cuidado à Criança]]></kwd>
<kwd lng="en"><![CDATA[Special Education]]></kwd>
<kwd lng="en"><![CDATA[Cerebral Palsy]]></kwd>
<kwd lng="en"><![CDATA[Child Care]]></kwd>
</kwd-group>
</article-meta>
</front><back>
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